Patient  Support Network Information

We understand that battling sarcoma and supporting those coping with the disease is a draining process. Finding a patient support network enables a sense of community and connection among people who understand the challenges of sarcoma firsthand. 

At Sarcoma Oncology Center, we partner with various organizations and have created an online presence that provides you with care and connection. Through forums, support groups, and shared experiences, we aim to provide a space where you and your caregiver can find understanding, encouragement, and hope.

Our team strives to ensure that along with receiving the best treatment options for your condition, you and your loved ones also receive emotional and mental support.

Finding the Support You Need

Whether you are in the midst of your battle against sarcoma, recovering after sarcoma treatments, or supporting a loved one coping with sarcoma, receiving emotional and mental support via community and connection can make a world of difference. 

At Sarcoma Oncology Center, we understand that navigating sarcoma treatment can be overwhelming, both emotionally and physically. Our team is dedicated to providing a safe and supportive atmosphere in all aspects of sarcoma treatment. 

Here is a list of support channels you can consider.

Alice’s ArcAlice’s Arc is dedicated to finding more targeted treatments for those affected by rhabdomyosarcoma.
American Childhood Cancer OrganizationThe American Childhood Cancer Organization provides 24-hour online peer support. Their rhabdo-kids group was founded by parents of children with rhabdomyosarcoma, who can provide information or support regarding treatment.
Chondrosarcoma FoundationChondrosarcoma Foundation is committed to supporting the patients, families, and caregivers impacted by  Chondrosarcoma, educate the public, and advocate to improve the treatment and care for these patients.
Chordoma FoundationChordoma Foundation helps patients and caregivers with personalized patient navigation services, an online community, peer guides, and various educational and support events.
Fibroid FoundationFibroid Foundation aims to eradicate uterine fibroids through research, education, advocacy, legislation, event organizing, and innovative consulting.
Fibroid Special Interest Group (FSIG) by ASRM FSIG supports and promotes education, research, and knowledge in the field of fibroid development, growth, pathophysiology, clinical manifestations, and treatment.
Leiomyosarcoma Support & Direct Research FoundationA nonprofit started and run by an all-volunteer staff of patients and caregivers, LMSDR empowers patients with education and support through their webinars, LMS Lifeline phone number, LMSeAlerts newsletter, and the Facebook group of over 4,000 patients/caregivers.
MIB AgentsMIB Agents is a nonprofit dedicated to patients, families, medical professionals, and researchers through programs, education, and research on pediatric osteosarcoma. Their Family Funds program raises money for kids and young adults with osteosarcoma.
Move For Jenn FoundationMove For Jenn Foundation brings the community together to advocate for sarcoma patients. Their goal is to help increase funding for vital sarcoma research and therapies.
National Leiomyosarcoma FoundationNational LeioMyoSarcoma Foundation collaborates with several sarcoma working groups throughout the US and Canada to strengthen and amplify patient, family, and caregiver resource support.
Sarcoma AllianceA nonprofit organization started in 1999 to assist individuals affected by sarcoma. They strive to improve the lives of people affected by sarcoma through accurate diagnosis and improved access to care, guidance, education, and support. Sarcoma Alliance provides all services free of charge.
Sarcoma Oncology Center Private Support GroupOur confidential, members-only private Facebook support group is dedicated to patients newly diagnosed, undergoing treatment, or in 'remission' from any type of sarcoma. Members can share their stories, provide insight and care for others in the group, and participate in various online activities to find the support they need.
Sarcoma Oncology Center’s TwitterSarcoma Oncology Center’s Twitter offers feeds on treatment news and support.
Sarcoma Oncology Center’s FacebookSarcoma Oncology Center’s Facebook page is an online source for the latest sarcoma cancer news and treatment developments.
Sarcoma Foundation of AmericaFounded in 2000, Sarcoma Foundation of America raises money to fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.
Smart PatientsSmart Patients offers an online sarcoma community where patients and caregivers affected by sarcoma learn from each other. It also provides support groups for different types of sarcoma.
The Osteosarcoma CollaborativeThe Osteosarcoma Collaborative supports new treatment options for patients through advocacy, fundraising, and education regarding the disease.
Wendy WalkFounded in 2010, Wendy Walk is dedicated to advancing sarcoma research and raising awareness and financial support for sarcoma survivors and treatment.

Contact Sarcoma Oncology Center Experts Today

Our team at the Sarcoma Oncology Center is ready and able to support you through every step of the treatment and remission stage, with special care for your physical and emotional well-being. 

At our office in Santa Monica, we design personalized and innovative plans for treating sarcomas.

To schedule a consultation, please call us at 310-552-9999 or request an appointment online. 

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